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Raising a child with disabilities

Be of Good Cheer!

The holidays can be stressful and this year has been full of difficult situations for everyone. I believe that the Bible has messages that are valid for us today. Consider 2 Corinthians chapter 4 verses 8 – 10. 8 We are troubled on every side, yet not distressed; we are perplexed, but not in despair;9

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Another Joyful Moment.

This past weekend, we celebrated Nick’s 40th birthday.  It was one of the most memorable parties we have held here.  100 people joined us in the mild afternoon sunshine, lavished presents and well wishes on Nick, ate wonderful Mexican food from Ixtapa (our local favorite restaurant) and spent a couple of hours laughing and visiting

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You not see me.

Today’s Nick story is just plain funny.  We were watching a recorded singing competition TV reality show and although the show wasn’t over, it was time to put Nick in bed.  With a typical kid response, he said, “No I go to bed.”  And also typically as parents we said, “At the end of this

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Just be patient, I’m a work in progress

As I have mentioned, Nick often will communicate thoughts and ideas through songs and their lyrics.  Today, during his morning bathing and dressing routine, it was Alan Jackson’s song, Just be Patient, I’m a Work in Progress.  It made both Arden and I laugh. The idea is intriguing.  The lyrics are specifically about a couple,

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It’s the music.

Yesterday was Easter Sunday, a wonderful day for our family, full of worship, food, fun and music.  Nick has always been comforted by music.  Even as an infant when it was difficult to soothe him, I discovered that singing to him would stop his crying.  Later when he had endless doctor and therapy appointments, the

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Have Patience for the Process.

Nick is an artist.  He loves to create.  He doesn’t really specialize in any specific medium or modality.  He loves trying them all.  Through his day program, Nick and his friends get the opportunity to attend Northwest Art Center in Duvall.  They offer many different experiences with art and Nick loves it.  The art teachers

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Where’s the instruction manual?

Sometimes I have wished that kids came with an instruction manual.  This is especially true when raising a child with special needs. Most parenting books are designed to help parents gain the skills and expertise needed to raise healthy, well adjusted children.  Parents of kids with special needs desire that same thing, but the message

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The Road Not Taken.

Since, as my kids point out, I have lived in seven decades, I have plenty of life to look back on and I wonder what my life would have been like if I had made different decisions. Growing older, the poem “The Road Not Taken” takes on more significance for me.  It is the famous

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There Are Angels Among Us.

Music is very important to Nick and often he wakes up singing.  Today it was Alabama’s hit “Angels Among Us.”  Some of the lyrics are circling my mind long after he had moved onto the next song. “Oh, I believe there are Angels Among Us. Sent down to us from somewhere up above. They come

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Is it good luck or bad luck? How do you know?

We follow an Irish girl vocal group called the Henry Girls.  They sing a poignant ballad called “How Do You Know?”  The main question posed by the lyrics is: How can you tell if an event or a situation is good luck or bad luck?  Sometimes we are quick to judge that we are experiencing

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.