Home / Archives for November 2017
Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum. Some days our responsibilities feel overwhelming. Those days, when we are observing our life, all we can see is the storm clouds and the rain pouring down. We have so many things to do and are not
We are working on getting all the Christmas decorations put up. Nick is impatient. Some of the lights need to be replaced. He also doesn’t understand that we need to take time to sleep and eat and do work. He just wants the decorations to be done. The main problem is that our light strings
Nick has strong opinions on what he considers the correct timing of things. Yesterday was Thanksgiving and today begins the Christmas season. First thing this morning he began singing Christmas carols. Sometimes during the year, I tease him a little bit. I will start singing Christmas carols when it is not between Thanksgiving and New
Today being Thanksgiving in the United States, I have been thinking about gratitude. I am grateful for a husband who understands me and treats me with kindness and compassion. I am grateful for forgiveness, not only from Jesus, but from everyone that I know. I am grateful for children who have courage to do what
Often we look at our current situations in life and say, “I would be happy, if only I had …” (Fill in the blank) We believe that our happiness or our success is dependent on gaining something we don’t have. The path to gain that thing can be obscured and seem daunting or even impossible.
The logistics of traveling with Nick has gotten more cumbersome as his Lennox-Gastaut Syndrome (LGS) progresses. However we all love traveling and the extra effort is worth it. After the LGS conference in Orlando we stayed on a few days. We went in the hot tub, out to dinner, visited friends, but the thing that
There were many things that I loved at the second day of the LGS Foundation Conference in Orlando. There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics and precision medicine. We had a great banquet and dance. It was a wonderful day. I took a
Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017. For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has. It is a rare epilepsy disease that shows specific characteristics including multiple types of early onset hard to control seizures with slow spike and
This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds. It is a dose Nick has taken before when we would be traveling and he needed extra meds to combat the stress of changing time zones.
Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.
Here is a quick glimpse of the story.
Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.
Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.
This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?
This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.
