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This is the Life!

The logistics of traveling with Nick has gotten more cumbersome as his Lennox-Gastaut Syndrome (LGS) progresses.  However we all love traveling and the extra effort is worth it.  After the LGS conference in Orlando we stayed on a few days.  We went in the hot tub, out to dinner, visited friends, but the thing that Nick wanted to do each morning was sit in the screened patio and watch the kids play in the pool.  His comment, “This is the life!” says it all.

Everyone has challenges in their life.  The key is to look for the good moments and then hold on to those memories.  Pictures can help remind us, and writing in a journal is helpful.  Another idea is to keep a gratitude journal.  This might be especially helpful, since for Americans, November is our thankful month.  It is also National Epilepsy Awareness Month.  That is a little ironic to me.  The one thing that Arden and I have said many times during Nick’s life is that we could easily handle everything else, if Nick just didn’t have seizures.

The journey recently for me has been to find things to be thankful for within the experiences of uncontrolled seizures.  This has been hard, but here is a short list of some of the blessings for which I am thankful.

People, often strangers, are kind to us and offer to help.

Arden and I are closer as a couple as we work together to care for Nick during those extreme moments.

I have met and grown to love other parents who have experienced the same issues with LGS.

I have compassion for others as they support their family members with a rare and debilitating disease.

Those hard days have shown me with pinpoint focus what is truly important in my life.

These are a few of the blessings I’ve noticed and you probably can think of more that you have received as you courageously face your own struggles.  Lets learn to be more grateful, especially this November, the Thankful Month of Epilepsy Awareness.

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.