June 2017

Adjusting to the new normal.

Ancient Greek philosophers taught us “The only thing that is constant is change.”  It seems that just as soon as I get used to the current changes in our lives, we are facing a new normal.  Nick has fallen a couple of times this past spring, one caused a broken ankle, the other caused a

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Follow your heart!

I wanted to share this story not only because I think that it is a very cute story about Nick, but also because I believe that wisdom and support can often come to us from unexpected sources if we are open to receiving it. The other day, Nick’s younger brother Derek and I were discussing

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Choice and Accountability

As a parent, I understand that one of my main duties is to keep my child safe.  Safety for infants is different than safety for toddlers, teenagers or adult children.  Each of their developmental stages required me to relearn my role as their parent.  I had some success and some failures in my journey of

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Make Accommodations!

During our trip to Ireland last fall Nick had a seizure while Arden was bringing him down the stairs.  Because someone was with him as always, he wasn’t injured, but we felt that it was a warning.  We determined that we needed to make some changes to our home here.  We needed to think outside

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“That man sit down.”

Nick loves music, especially when it is performed live.  We noticed from our first trip to Ireland that the musicians here are very talented.  Nick has a special place in his heart for a local singer/songwriter, Shunie Crampsey.  Just after the concert with Phil Coulter this past week, Nick said to us, “Now Shunie.”  Meaning

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Dad, You’re weird!

Most every morning Nick wakes up in a great mood.  He sings songs and talks non-stop while we get him cleaned up to start the day.  Arden loves to tease Nick when they are talking or singing.  He will change words around or will completely ad-lib lines.  His sense of humor is one of the

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Dreams do come true.

For the past 18 months, we have been doing everything we can to give Nick all of the experiences that will bring him joy.  The doctors have told us that his epilepsy is progressing and it is obvious to all that know him that his capabilities have diminished over this time.  I know that sounds

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Fake it ’til you make it.

We all face unexpected difficult situations.  These events might look different to each of us, but they elicit universal emotional responses.  Frozen in fear, we can succumb to self-doubt and actually keep ourselves from moving through these hard events in our lives.  It is these very events that have the capacity to become the catalyst

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Nick’s genius.

Often when we are in the car, Nick wants to sing.  He picks the genre of the song based on the circumstances.  For example, in Ireland we sing Irish songs, in December it is Christmas carols, and on Sundays it is hymns.  He can sing for the entire length of the car ride, even hours,

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Still Dancing.

Nick loves music and he loves to dance.  On Friday we were at a surprise ceili celebrating my 60th birthday.  My 87 year old relation, Moira “Saddler” Doherty played the piano while we all sang and danced. Just watching Nick brought joy to the rest of us.  His feet and hands keeping time.  The smile

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