December 2017

Merry Christmas.

When Nick was little, the doctors warned us many times that he would probably get to a point where he’d reach a plateau in development and quit learning new things.  That hasn’t happened. I want to tell you about our Christmas Miracle this week. Last  Wednesday, while we were experiencing all the fun hectic traditions

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Death is unexpected.

Today is the 25th anniversary of the day my dad moved his residence to Heaven.  He went a few days before the big birthday celebration for Jesus.  Nick celebrates the day people pass away as their Heaven day, to him it is like a birthday.  He remembers loved ones and sends them balloons up to

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Tradition, Tradition!

The Christmas holiday begins next weekend and the common question asked is, “Are you ready?”  Well most of you are not as lucky as me.  I have a personal assistant named Nick, that makes sure I am ready long before the Christmas rush. Starting just before Thanksgiving, Nick begins reminding me that Christmas is coming

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Just another normal response.

We have all experienced it.  We are trying our best to handle a situation and then someone, who hasn’t any experience with what we are going through, decides what is best and tells us what we should do.  I have had various responses over the years to the same scenario, but last week my response

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What would I do?

My son Nick has a rare, debilitating, life threatening disease called Lennox Gastaut Syndrome.  For over 38 years I have been consciously aware that with LGS he has an increased risk of unexpected premature death.  There is even a name for it.  SUDEP, sudden unexpected death from epilepsy.  This hangs over me every day.  When

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