November 2018

Adapting to our new normal.

Creating every-day routines helps with shouldering the burden of care-giving.  We have found that using timing devices and lists to complete complicated medication time schedules, and having customary procedures for bathing, hygiene, as well as dressing and food preparation help us more easily complete the daily tasks required to care for Nick. It can all

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It’s a little too late.

Sometimes Nick says the funniest things, and the most poignant too.  For the past few weeks, we have learning how to make better food choices for the three of us.  We have been reading books and consulting with certified dieticians and nutritionists, as well as Nick’s group of doctors.  Arden and I have been focusing

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Can I go on?

Nick loves to sing.  He has memorized hundreds of songs and sometimes he is like a human juke box, singing one song after another, end to end.  This musical feast can get interrupted.  Arden or I might receive a phone call, or there is something we need to talk about or we arrive at our

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