May 2017

Kindness is always welcome.

We arrived last night at our second home in Ireland. We were all delighted and relieved to be here. Traveling can be rough for anyone, but it can be particularly challenging when one of the passengers has special needs. This trip the airline staff at each location went out of their way to help assist

Read More »

Express gratitude to others.

One of our dear friends, Martha Jones has been a caregiver for Nick for the past 20 years. As my kids will report, she takes care of all of us, not only Nick. This past week she fell and suffered a fracture to her ankle. She has a boot just like Nick did in March

Read More »

Expect the unexpected.

This week has been more hectic than usual for us.  Nick was sick, which is stressful, and we were trying to finish all the things on our lists before we left for Ireland.  Throw in some birthday celebrations and friends visiting.  It was a full week. Thursday we packed.  Nick calls it “final packing day.”

Read More »

Make a list!

Years ago a very wise woman taught us that Nick was experiencing anxiety.  We had no idea.  For a short period of time, Dr. Susan Alling was a part-time caregiver for Nick.  She taught us to recognize when increased anxiety was the underlying cause of his acting out behavior.  In addition, she showed us techniques to use

Read More »

An up and down day.

Today was a rough one. Nick was sick. It might turn out that he just has a cold, but that is the problem, we never know. He kept sneezing. I think that if I was watching our day today on a TV show, I might even think it was funny. It could be considered slap-stick

Read More »

“I like that dress.”

Today I was reminded of another great truth by Nick. Arden, Nick and I were watching a local figure skating competition this afternoon. The competitors were not elite level skaters. Most of the kids were pre-teens who were at the beginning levels of competitive ice skating. There were lots of mistakes and falls. I was

Read More »

Don’t Procrastinate, Just Do It!

We all experience this.  There is something that we need to do.  We have agreed to it.  Others are counting on us.  It is looming and for many different reasons, we put it off and do other things instead.  We know that there will be consequences that follow our procrastination, but we weigh those consequences against our choice

Read More »

Find a way to make it work.

Back in 1997 when Nick was 18, all the other kids were playing Nintendo video games.  Nick especially liked Super Mario Brothers.  He kept asking everyone if he could play with them.  The kids were very competitive and liked to see who could reach the highest levels, while collecting items and not dying.  They didn’t always

Read More »

Lookin’ good.

Everyone needs to receive compliments, sincere compliments.  In fact, Nick will often help us remember to compliment him.  He will say, “I good, I got a hair cut.  You see it.”  or “you like my shirt, I handsome.”  And then he smiles that big Nick smile when we agree with him.  Sincere compliments can assist

Read More »

I am grateful for technology.

Change is hard for Nick. He likes to be at home either in Carnation or in Carndonagh. He is happiest when both of his parents are with him – all day long. Well to be constantly surrounded by our loved ones is not realistic so he is often disappointed. Unfortunately this also leads to anxiety

Read More »