On the road again!

On the road again!

Nick woke up Monday morning quite excited. He didn’t even say good morning in response to me entering his bedroom. He started singing, “On the road again!” I cracked up. He knew that we were traveling to Ireland and understood...

Top Gun Mask.

Top Gun Mask.

In the fall of 2010, Nick’s seizures were out of control.  Our epileptologist (a neurologist who specializes in epilepsy) was looking for all sorts of solutions including the usual medicine changes.  Some of the factors used to manage...

Adjusting to the new normal.

Adjusting to the new normal.

Ancient Greek philosophers taught us “The only thing that is constant is change.”  It seems that just as soon as I get used to the current changes in our lives, we are facing a new normal.  Nick has fallen a couple of times this past...

I am in awe.

I am in awe.

I am in awe whenever I witness the kind generosity and love others show to our Nick. It is pretty well know that Nick loves airplanes.  He takes the toys with him where ever we go.  Some places they have to stay in the car while he goes inside...

Don’t underestimate what is possible.

Don’t underestimate what is possible.

A couple of years ago we decided to add on a few days in Paris to our usual trip to Ireland.  Both Arden and I had wanted to visit the City of Lights, so we asked Nick if he wanted to go to Paris.  He said “Yes, we see the sights.”...

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