Merry Christmas.

Merry Christmas.

When Nick was little, the doctors warned us many times that he would probably get to a point where he’d reach a plateau in development and quit learning new things.  That hasn’t happened. I want to tell you about our Christmas Miracle...

Embrace The Unexpected Joyful Moments

Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the...

Do you suffer from the Impostor Syndrome?

Do you suffer from the Impostor Syndrome?

This morning, I got notification that an article I had written had been published in the Rare Patient News.  The topic is traveling when you child has special needs.   I was excited to learn about it and was reminded of a skit by Steve Martin. ...

Singing all the verses of the National Anthem.

Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to...

Nick was Determined!

Nick was Determined!

Some days for Nick are better than others.  His capabilities and capacities seem to be variable.  When he is having a good day, we encourage him by letting him be as independent as possible in his self-care.  Sometimes if we are in a hurry or...

You done being frustrated with me?

You done being frustrated with me?

Most of the time, Nick is very sweet and compliant.  However, he is human and there are times his behavior is not correct and I get frustrated at him.  Even angry. As soon as he notices that I am upset, he immediately apologizes.  “I sorry...

Mom, I ok!

Mom, I ok!

If you ask Nick, today is the best day of the year.  It is even better than Christmas or Easter, or anything.  It is his birthday.  Born in 1979, he is 38 today.  Each year, he is so excited as he anticipates the arrival of the 19th of August...

Follow Eva : Get Notified When She Shares a New Article!

Follow Eva’s Blog

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 15,884 other subscribers