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Wait! Stop! I got on the wrong ride.

When I was a young mom, I was not naïve; I knew that life has it ups and downs.  I expected a Merry-Go-Round, and got a Roller-Coaster.

I thought that my life would go up and down, up and down, in gentle expected cycles of highs and lows.  I didn’t anticipate the sudden terrifying plunges, wrenching curves and extreme changes.

I had certain expectations with the birth of my second son.  We carefully selected his name.  I remember thinking before he was born that no matter what his chosen career, Nicholas James Gremmert would sound strong and professional.

After his birth, Nick was so lethargic.  Fear crept in my heart.  Like most babies, he was always asleep or crying, except I couldn’t seem to comfort him.  Feeding him was an issue from the start and throughout the first year, I was told it was “failure to thrive.”  Some doctors even said that I had an overactive imagination and that there was nothing wrong with my baby.

Then the seizures started.  Scary and unexpected, they changed our lives forever.

Nick is now 38 years old.  He has been diagnosed with Lennox-Gastaut Syndrome or LGS, a rare and severe kind of epilepsy that typically starts in childhood. Children with LGS have several different kinds of seizures, often.  Some children have experienced up to 150 seizures a day.  LGS is also characterized by a resistance to medication, behavior disturbances, and moderate to severe cognitive dysfunction.

This condition is hard to manage, the common protocol is a multiplicity of seizure medicines with other modalities and treatments to try and control the seizures.  Individuals with LGS have an increased risk of death usually because of seizure related complications.

In the midst of the horrible experiences, we realized that we needed to hold on to the moments of joy.  Even the biggest roller-coaster has momentary peace, usually at the highest and lowest points of the ride.  We began to comment to each other when we noticed the genuine joyful moments.  We call them our tender mercies.

We have met so many wonderful people because we have Nick in our life.  We have experienced such extreme stress because we have Nick in our life.  The highs are sweet and the lows are terrifying.  Some days we thought that our time with Nick was nearly over.  Even today, I have no idea what the future holds for us.

Arden and I have developed the strength to stand in the middle of the storm and look for the calm that we know will always eventually come.  Every moment that we have with our loved ones is precious.  The memories are strung together like a cherished pearl necklace shimmering in the light of awareness.

We find joy every day.  Every minute if we can.  Sometimes we forget when the situation is particularly trying or we are exhausted.  Then some moment of emotional sunshine bursts forth and we remember.

Try to remember that there is joy in the journey.  Look for it.

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.