Write me: eva@evagremmert.com
Recent Posts
You not see me.

You not see me.

Today’s Nick story is just plain funny.  We were watching a recorded singing competition TV reality show and although the show wasn’t over, it was time to put Nick in bed.  With a typical kid response, he said, “No I go to bed.”  And also typically as parents we said, “At the end of this... Read More

Finding my tribe.

Finding my tribe.

18 months ago I walked into a hotel in Orlando wondering if it would make a difference.  It was the night before the 5th Lennox Gastaut Syndrome Foundation International Conference was starting and I had been invited to meet some of the other attendees ahead of the event. I usually shy away from meeting perfect... Read More

Just be patient, I’m a work in progress

Just be patient, I’m a work in progress

As I have mentioned, Nick often will communicate thoughts and ideas through songs and their lyrics.  Today, during his morning bathing and dressing routine, it was Alan Jackson’s song, Just be Patient, I’m a Work in Progress.  It made both Arden and I laugh. The idea is intriguing.  The lyrics are specifically about a couple,... Read More

It’s the music.

It’s the music.

Yesterday was Easter Sunday, a wonderful day for our family, full of worship, food, fun and music.  Nick has always been comforted by music.  Even as an infant when it was difficult to soothe him, I discovered that singing to him would stop his crying.  Later when he had endless doctor and therapy appointments, the... Read More

All
I am Nick's mom
  • Who is Nick J.?
  • "Oh well."
  • Fighting.
  • How's Nick?
  • Helpless.
  • You fix this?
  • Be Brave.
  • Avoidance.

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