Sometimes I ask, is it worth it?

Sometimes I ask, is it worth it?

As a consequence of his Lennox Gastaut Syndrome, Nick’s mobility has decreased over time and he has experienced regression of many skills that he worked hard to master.  So of course, because of this regression, his personal care needs have...

Wait! Stop! I got on the wrong ride.

Wait! Stop! I got on the wrong ride.

When I was a young mom, I was not naïve; I knew that life has it ups and downs.  I expected a Merry-Go-Round, and got a Roller-Coaster. I thought that my life would go up and down, up and down, in gentle expected cycles of highs and lows.  I...

I want to be honest, but can I?

I want to be honest, but can I?

I watched a facebook video the other day that had gone viral.  A brave young mother tearfully shared her feelings about her life caring for her child with autism.  She said, “Some days it is not ok.”  My heart swelled with pride and...

Be Brave! Ride the Wave!

Be Brave! Ride the Wave!

I have never been on a surf board, and I am not sure that it will ever happen, but I do like playing around in the ocean.   While the waves are beautiful as they come crashing onto the shore, the ocean is powerful and we need to recognize signs...

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