Nick is ok.
I was talking to another mom yesterday as she related to me a story that I knew well. Her adult daughter had started seizing the day before, over 20 Grand mal seizures in a 2 hour period. The mom wasn’t able to get the prescribed rescue meds into her daughter between the seizures. That was the part that was terrifying. She had to call the ambulance for transportation to the hospital where they could administer the needed medication. After a few hours, they were able to go home. When the daughter awoke in the night with more seizure, the mom was able to administer the medication so the crisis was averted.
As she was relating her story, I discovered that I was holding my breath and felt sick to my stomach. It was as if I had been standing there with her going through the experience.
In those minutes, each second seems to last a lifetime. As your child is seizing uncontrollably and all you can do is get them to the floor, turn them on their side, clear the surrounding area and the wait until it’s over. Frantically watching the clock to make sure that it doesn’t go ‘too long.’ In my opinion any seizure of any length is too long. Even after 37 years of caring for Nick through seizures, I don’t ever feel prepared and it is never easy.
The picture I included today was taken after a particularly long seizure series. Nick was asleep as is his usual pattern when the seizures finally stop and his sister Karen crawled into his bed behind him, exhausted emotionally and physically from the ordeal.
Unexpected and random, it often feel like a sucker punch to the gut when these situations happen. I am grateful for the emotional and physical support that we have received from our family and friends. I hope that I am able to give support to others when they need it.
Please share with me when you have been blessed by others during your darkest times. I believe that is an incredible blessing to hear the stories of others
If you know someone who would benefit form this blog, or the book when it comes out, please share this with them.
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CONBODY bietet Partner einen Gefängnisstil Übung, während frustrierend ihre besonderen Missverständnisse über Ex-Täter
Der Brief Variation: CONBODY
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18 Comments
I’m so sorry to hear this Eva, we are all thinking of you and we love you guys very much! I’m glad nick is ok after this terrible event.
Thank you Andrea, he is fine this morning. It’s a part of the disease and I do hate it. But the outpouring of love has been so amazing. Arden and I do feel blessed.
So terrifying. You know we all care for all of you. Love and hugs, Betsy
Thanks Betsy, we feel loved and supported.
Keeping you all in our prayers and thoughts, my friends. Hope you are getting a little rest after the trauma in preparation for flying home. Such rotten bad timing (but is it ever GOOD timing???). So relieved Nick has come through yet another seizure! You’re a champ, Nick! Hugs all around, and our love!
I have to trust that last night was the best time if it needed to happen. He had a wonderful day, saying goodbye to all his friends and the whole seizure series was less than 30 minutes long, which was miraculous in retrospect. Horrible in actual time.
Oh, Eva. I read this and said a prayer for Nick and you and Arden. How lucky Nick is to live inside such love. Keep strong.
Thank you Paula, he is signing this morning. Such a contrast from 9 hours ago. It seems that the storm is passed.
Your family and Nick are in our prayers.
Thank you Kjarsta – you are in our prayers too.
I’m glad you started with “Nick is OK”. Of COURSE it wipes you out from the emotional and physical intensity! You love him so fully… It shows.
I thought about what to title the blog, it was scary enough and by the time I was writing about it, the drama was over.
Thank goodness Nick is okay. I saw the photo and my heart stopped for a moment. Nick is so blessed to have you and Arden. You’re always so patient and loving with him yet “battle ready” at a moments notice. I’m truly in awe of you both. ❤️
Thank you Cathy – it is still awful sometimes and he is awe inspiring too.
(((hugs)))
Thanks Rosie, he is his usual self this morning so far.
My heart goes out to you, Arden and Eva! You two are such an inspiration and wonderful parents. Hugs and more HUGS! It hurts so much when your kids hurt!
Thanks Carolyn!
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