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Keep on going, and going, and going.

I was chatting this morning with a mom who’s 16-year-old daughter has the same syndrome as our Nick.  She said that just when she thinks that she can’t do anymore, then somehow she keeps on going, just like the Energizer Bunny.

I have an Energizer Bunny Christmas tree ornament that reminds me that I can keep on going when the road seems overwhelming.

My friend mentioned that at her last meeting with the neurologist, he brought up concerns like estate planning and guardianship, trust funds and state ID cards.  It was a great idea on the doctor’s part as getting the ball rolling to have these things set up needs to be started about 6 months before the child is 18, but the presentation of the information kind of shocked this mom.

I find that even the most logical and expected events can put me in a tailspin.  This surprises me. I’m puzzled at the times that I am strong versus the times that I fall apart.  I can’t seem to find a logical explanation for either response.

It helps for me to try to look a little ahead to try and anticipate what might be down the road for our family.  It helps as long as I don’t let myself get consumed with worry and concern about how it all will work out.  So I have to find the balance between considering likely probable outcomes and overwhelming myself with all of the possibilities.

One thing is crucial for me.  I need to make sure I am caring for my physical and emotional needs.  When I start down that overwhelm road, I ask myself questions like:  Am I getting regular nutritious meals and enough sleep?  Am I taking time each day, even a few minutes, to stop and meditate?  Do I spend time each day with someone who loves and cares about me, so I feel that human connection?

I have learned that the honest answers to these questions will often point out to me where I have let myself down.  At different times, I have used other tools that are available to me as well such as counseling and medication.  Sometimes life’s burdens are difficult to carry and I find that if I don’t care for myself, I am not able to care for Nick.

I have heard it said that we must fill our own well so that we can give buckets of water to others.  I like that analogy.

What do you do to refill your well?

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One Comment

  1. Love it Eva!!! Love it!!

    Life, we can live with a dead battery or we can find a way to recharge it!! Recharging it is what we have to do!!! Thanks for all you do!

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.