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Happy 39th Birthday to Nick!

Nick loves birthdays, especially his own.  To him, it is the best day of the year.  Last year on this day, the eve of Nick’s birthday, I had a huge paradigm shift.

For years, in spite of my usual positive proactive approach to caring for Nick, that one day each year was a dark and difficult day for me.  It is embarrassing to admit this, but I would mark the number of years that Nick had been with us with reminding myself of the milestones that others his age had experienced.  I completely compared his life to others and that particular day, only found lack.  I would always leave my personal pity party once that date had passed, but I would return to the same emotional place year after year.

One year ago, Nick asked me why I wasn’t happy about his birthday coming up.  I told him the reason.  Thoughtfully, and looking straight into my eyes, he said, “I all right mom!  I happy.  You be happy, ok?”

In that one moment, the pain of comparison and feeling of lack was swept away.  I had a wonderful day that next day.

This year has been incredible.  From the first of August, Nick has discussed his birthday from the moment he has woken up each morning until he has gone to sleep.  He planned the food that he wants to eat and has talked to everyone he’s met about his upcoming birthday.

He decided that he wanted a big birthday party, so today we went shopping.  He dictated the list.  At the top was balloons.  I didn’t get 39, but we did get 26.  That was all I thought we could fit in the car to get home.  It was a tight squeeze.

This evening Arden went back out to the store to get a few things we still needed.  Nick asked me to text his dad, and then call him too, so that Arden wouldn’t forget.  Arden got everything on the list.

We are going to have a glorious day tomorrow.  Our friends and family will gather, it will be a blast.

There are things that are difficult about caring for someone who has a life threatening syndrome.  It can be really stressful at times.

One thing I must mentions is that the outpouring of love and tenderness I get to witness, as I stand by Nicks side, is awe-inspiring.  Most of the time, I am privileged to observe the kindness and compassion others show to Nick.  People showing up with their best selves.  That is one of the truly wonderful things about being with Nick – just by being himself, he helps bring out the best in all of us.  For that I am grateful.

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.