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Celebrating awesome people.

I was invited to help celebrate the 40th birthday of Children’s Therapy Center based in Kent, Washington.  CTC has always been on the forefront of multi-disciplinary therapy for children to help them achieve maximum independence.

My chance to speak gave me the unforgettable opportunity to publicly acknowledge and thank three people who dramatically changed the trajectory of Nick’s life.  We met Dr. Stephen Glass in 1980 just as he was starting his private practice as a pediatric neurologist.  He not only developed a cutting edge treatment plan for Nick’s seizures, he mentored Arden and me through those critical early years, referring us to the therapists that he believed would be the most helpful to Nick as an individual.  One of those amazing referrals was to CTC and speech therapist Gay Lloyd Pinder for Nick’s feeding delays and Nancy Hylton for casting and splints to improve his mobility.

Nick had feeding issues since birth and over his first couple of years his ability to swallow improved, but he lacked the ability to bite and chew.  Since Nick could swallow and feeding tubes were then commonly used only as a treatment for kids who couldn’t swallow, we were pureeing his food three times a day.  Before we met with Gay Lloyd, we had gone through three blenders and he began refusing to eat the large amount of gruel we tried to feed him.  He was losing weight and I was worried about his nutrition.

Right away, Nick began seeing Gay Lloyd twice a week at CTC and started making progress there.  However, we didn’t see the same new skills transfer to home or anywhere else.  Gay Lloyd decided to come by our house before school, twice a week on her way to work, for his feeding therapy.  It was a long, laborious process with slow progress.  Two times a week our family sat around the breakfast table eating oatmeal with Gay Lloyd encouraging, “in the mouth, Nick, in the mouth.”  Finally, after quite a few years, Nick learned to bite, chew and self-feed.  The one downfall is that now, none of my other children will ever eat oatmeal again.  It’s a small price to pay.

In recent years, Gay Lloyd encouraged me to write our story.  My memoir titled, “Our Time to Dance, A Mother’s Journey to Joy,” is now being published by Covenant Books and will be available in stores and online within the next month.

Nancy continues to bless our lives with the amazing orthotics she makes for Nick’s feet and ankles.  His continued mobility is due in large part to her commitment to create just what he needs.

We are grateful every day for the dedicated service of pediatric neurologist Dr. Stephen Glass, speech therapist Gay LLoyd Pinder and therapist Nancy Hylton, as we see the fruits of their labors in the things Nick has accomplished in these 40 years.

The home movie video of my presentation is posted on YouTube.

Please share this blog with others.  If you want to get a copy of the book “Our Time To Dance,” about my journey with Nick as soon as it is available, click here to sign up.

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  1. I loved your blogs Eva. You give such great hope to people like me who has a severely autistic grand daughter with epilepsy. Thank you for sharing you journey!

    1. Carol, Thank you for your kind comments. I am grateful that we are able to help one another through the sometimes dark days. We can experience joy even in the hard times.

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.