LGS

Keep on learning.

Nick loves being around little children.  He enjoys watching them run around playing.  He learns so much from them.  Last night we had the pleasure of Madi who is 8 and Bridger who is 4, staying over night with Granny, Grandpa and Uncle Nick.  We ate good food.  There was some healthy food, but mostly

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Don’t jump to conclusions.

We operate an income tax business and yesterday was tax filing day in the US.  Our tradition is to take everyone in our family out to dinner and so we gathered at a very popular restaurant near our home.  It was so crowded that we had trouble getting Nick’s wheelchair through the tables to where we were to

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Happy Easter. Happy – Nuss!

One of Nicholas’s ‘nick-names’ is Nuss, as in Nick-a-nuss, which we sometimes extrapolate to Glad-nuss or Sad-nuss or Tired-nuss.  You get the idea!  Well this morning we have Happy-Nuss.  Two reasons, he loves Jesus and he loves Easter and he tells us that he love’s Jesus’ sacrifice.  He died and He lives again.  What a

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Information about seizures.

Our son Nick has epilepsy.  He has an epilepsy syndrome called Lennox Gastaut Syndrome, or LGS.  It is a type of epilepsy with multiple different types of seizures that begins in childhood.  The seizures are hard to control and require life-long treatment.  Intellectual and behavioral problems add to the difficulty of managing life with LGS.

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“I am walking now.”

We got some great news today.  After reviewing new x-rays, the doctor said that Nick’s ankle is healed up and he can retire his walking air cast.  I thought that Nick would show more excitement when he heard the news.  I think that the doctor wondered if Nick understood what was happening.  We took the

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What Will Tomorrow Bring?

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Fireworks on the 4th of July.

Nick’s first 4th of July was life changing.  He was 10 1/2 months old in 1980 and although he didn’t cry all the time like he had as an infant, he spent most of his waking hours just looking around.  He didn’t really seem to respond to any outside stimuli.  We had been living in Tacoma for

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Siblings.

Nick was first officially diagnosed when he was about a year old, which was about the time that I realized I was pregnant again.   I calculated that Ryan would still be 2 when the baby arrived and Nick was not accomplishing normal developmental levels.   I couldn’t imagine how I was going to manage my life.

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What’s your name?

Nick loves people and he is unafraid to initiate a conversation with everyone that he meets.  We began noticing this habit of his about 10 years ago when we started using a wheelchair while we were traveling with him.  We would use the service offered by the airport to have a person push his wheelchair through the

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Working.

Nick loves to work.  He is always asking if he can help get pans out when we are cooking, or get the dishes out of the dishwasher or putting wood in our fireplace. He also has a formal job, with a job coach.  He shreds papers in an office for a few hours each week.  His

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.