18 months ago I walked into a hotel in Orlando wondering if it would make a difference. It was the night before the 5th Lennox Gastaut Syndrome Foundation International Conference was starting and I had been invited to meet some of the other...... Read More
As I have mentioned, Nick often will communicate thoughts and ideas through songs and their lyrics. Today, during his morning bathing and dressing routine, it was Alan Jackson’s song, Just be Patient, I’m a Work in Progress. It made...... Read More
Nick is an artist. He loves to create. He doesn’t really specialize in any specific medium or modality. He loves trying them all. Through his day program, Nick and his friends get the opportunity to attend Northwest Art Center in...... Read More
Sometimes when the days seem hard, I seek music that will help move me through those dark times. I am grateful for the many songs that combine insightful lyrics with talented vocalists. The song writers and performers are able to...... Read More
Sometimes I have wished that kids came with an instruction manual. This is especially true when raising a child with special needs. Most parenting books are designed to help parents gain the skills and expertise needed to raise healthy, well...... Read More
Since, as my kids point out, I have lived in seven decades, I have plenty of life to look back on and I wonder what my life would have been like if I had made different decisions. Growing older, the poem “The Road Not Taken” takes on...... Read More
Music is very important to Nick and often he wakes up singing. Today it was Alabama’s hit “Angels Among Us.” Some of the lyrics are circling my mind long after he had moved onto the next song. “Oh, I believe there are...... Read More
We follow an Irish girl vocal group called the Henry Girls. They sing a poignant ballad called “How Do You Know?” The main question posed by the lyrics is: How can you tell if an event or a situation is good luck or bad luck? ...... Read More
We are in Carndonagh, Co. Donegal, Ireland. For some it would be the trip of a lifetime, but since we come here a couple of times a year, the trip doesn’t have that same sense of the unknown. Don’t get me wrong, we love it here. We...... Read More
I see examples of bravery all around me. A friend fighting cancer again, others watching loved ones go through difficult things. Loved ones have passed away or lost their homes to terrible fires. I wonder in my heart – Could I face...... Read More
Creating every-day routines helps with shouldering the burden of care-giving. We have found that using timing devices and lists to complete complicated medication time schedules, and having customary procedures for bathing, hygiene, as well as...... Read More
Sometimes Nick says the funniest things, and the most poignant too. For the past few weeks, we have learning how to make better food choices for the three of us. We have been reading books and consulting with certified dieticians and...... Read More
Content copyright 2011-2017. Eva Gremmert. All rights reserved.
[jetpack_subscription_form title=”Follow Eva’s Blog” subscribe_text=”Enter your email address to follow this blog and receive notifications of new posts by email.” subscribe_button=”Follow” show_subscribers_total=”1″]