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NORD, an amazing charity to support!

NORD, or the National Organization for Rare Disorders truly is a life-saving organization.  NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Donations to NORD directly benefit families like ours.  One of the programs they have is to provide medication for those who are uninsured for certain life-sustaining medications.

Last year we were told by our insurance company that they would not longer pay for one of Nicks meds.  He is missing a critical enzyme in his digestive system that breaks down protein.  So without this prescription, his blood ammonia levels will rise to life-threatening levels.  He takes this drug three times a day to keep the ammonia level in his blood down.  We had only two weeks of pills left when we were told we wouldn’t get any more covered by our insurance company.

The manufacturer of the medication put us in touch with NORD.  We filled out their application and the next day we were told that our situation qualified for support.  Two days before we ran out of the pills, we had a months supply delivered to our doorstep at no cost to us.  Each month since then, it has been the same.

We have been really impressed with how caring and concerned the staff at NORD are.  They are genuinely passionate about helping Nick get the medications that he desperately needs.

I have never been so afraid as I was during those two weeks. I am so grateful for this organization.

If you are looking for a charity that truly makes an impact in other peoples lives, choose to donate to NORD today.  You can find information about the organization on FaceBook, Twitter, and their website.

Please share this blog if it resonates with you or you know someone who might benefit from it.  If you want to get a copy of the book as soon as it is available, click here to sign up.

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.