Write me: eva@evagremmert.com
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Just another normal response.

Just another normal response.

We have all experienced it.  We are trying our best to handle a situation and then someone, who hasn’t any experience with what we are going through, decides what is best and tells us what we should do.  I have had various responses over the years to the same scenario, but last week my response Share this:Click to share on Twitter (Opens in new window)Click to share on Facebook (Opens in new window)Click to share on Google+ (Opens in new window)... Read More

What would I do?

What would I do?

My son Nick has a rare, debilitating, life threatening disease called Lennox Gastaut Syndrome.  For over 38 years I have been consciously aware that with LGS he has an increased risk of unexpected premature death.  There is even a name for it.  SUDEP, sudden unexpected death from epilepsy.  This hangs over me every day.  When Share this:Click to share on Twitter (Opens in new window)Click to share on Facebook (Opens in new window)Click to share on Google+ (Opens in new window)... Read More

Embrace The Unexpected Joyful Moments

Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the rain pouring down. We have so many things to do and are not Share this:Click to share on Twitter (Opens in new window)Click to share on Facebook (Opens in new window)Click to share on Google+ (Opens in new window)... Read More

Nick is mad at me!

Nick is mad at me!

We are working on getting all the Christmas decorations put up. Nick is impatient. Some of the lights need to be replaced.  He also doesn’t understand that we need to take time to sleep and eat and do work. He just wants the decorations to be done. The main problem is that our light strings Share this:Click to share on Twitter (Opens in new window)Click to share on Facebook (Opens in new window)Click to share on Google+ (Opens in new window)... Read More

All
I am Nick's mom
  • Who is Nick J.?
  • "Oh well."
  • Fighting.
  • How's Nick?
  • Helpless.
  • You fix this?
  • Be Brave.
  • Avoidance.

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