Write me: eva@evagremmert.com
Arenaissance woman, a talented published author, a successful business woman, a professional genealogist, and public speaker.read full bio
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Information about seizures.

Information about seizures.

Our son Nick has epilepsy.  He has an epilepsy syndrome called Lennox Gastaut Syndrome, or LGS.  It is a type of epilepsy with multiple different types of seizures that begins in childhood.  The seizures are hard to control and require life-long treatment.  Intellectual and behavioral problems add to the difficulty of managing life with LGS.

Just another normal response.
Just another normal response.

We have all experienced it.  We are trying our best to handle a situation and then someone, who hasn’t any experience with what we are going through, decides what is best and tells us what we should do.  I have had various responses over the years to the same scenario, but last week my response

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What would I do?
What would I do?

My son Nick has a rare, debilitating, life threatening disease called Lennox Gastaut Syndrome.  For over 38 years I have been consciously aware that with LGS he has an increased risk of unexpected premature death.  There is even a name for it.  SUDEP, sudden unexpected death from epilepsy.  This hangs over me every day.  When

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Embrace The Unexpected Joyful Moments
Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the rain pouring down. We have so many things to do and are not

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Photo Gallery
All
I am Nick's mom
  • Who is Nick J.?
  • "Oh well."
  • Fighting.
  • How's Nick?
  • Helpless.
  • You fix this?
  • Be Brave.
  • Avoidance.

Great perspective. It's like having a front row seat to an absolutely amazing story. You will fall in love with this family, and learn why Nick's life is a life worth living.

Christina Stevulak

Eva amuses us by sharing the perceptive, treasured statements Nick surprises us with. She also makes our hearts ache as we walk with her, and the family, in the dark hours.  Her direct telling of her story as Nick’s Mom lifts us all to compassion and understanding.

Maureen Hoffmann

Straight from-the-heart, with frankness and celebration, Eva Gremmert writes about both the difficulties and joys of raising her disabled son, Nick, to manhood.

Natalie Jackson

Eva Gremmert captures human events and interactions in a simple, straightforward but intuitive way that makes what she has to say profound on a level that engages, teaches, and inspires her readers.

Karen Felt

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