Write me: eva@evagremmert.com
Arenaissance woman, a talented published author, a successful business woman, a professional genealogist, and public speaker.read full bio
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Information about seizures.

Information about seizures.

Our son Nick has epilepsy.  He has an epilepsy syndrome called Lennox Gastaut Syndrome, or LGS.  It is a type of epilepsy with multiple different types of seizures that begins in childhood.  The seizures are hard to control and require life-long treatment.  Intellectual and behavioral problems add to the difficulty of managing life with LGS.

This is the Life!
This is the Life!

The logistics of traveling with Nick has gotten more cumbersome as his Lennox-Gastaut Syndrome (LGS) progresses.  However we all love traveling and the extra effort is worth it.  After the LGS conference in Orlando we stayed on a few days.  We went in the hot tub, out to dinner, visited friends, but the thing that

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We all need support from others.
We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics and precision medicine.   We had a great banquet and dance.  It was a wonderful day. I took a

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The joy of shared experiences.
The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific characteristics including multiple types of early onset hard to control seizures with slow spike and

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I am Nick's mom
  • Who is Nick J.?
  • "Oh well."
  • Fighting.
  • How's Nick?
  • Helpless.
  • You fix this?
  • Be Brave.
  • Avoidance.

Great perspective. It's like having a front row seat to an absolutely amazing story. You will fall in love with this family, and learn why Nick's life is a life worth living.

Christina Stevulak

Eva amuses us by sharing the perceptive, treasured statements Nick surprises us with. She also makes our hearts ache as we walk with her, and the family, in the dark hours.  Her direct telling of her story as Nick’s Mom lifts us all to compassion and understanding.

Maureen Hoffmann

Straight from-the-heart, with frankness and celebration, Eva Gremmert writes about both the difficulties and joys of raising her disabled son, Nick, to manhood.

Natalie Jackson

Eva Gremmert captures human events and interactions in a simple, straightforward but intuitive way that makes what she has to say profound on a level that engages, teaches, and inspires her readers.

Karen Felt

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