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Raising a child with disabilities

What Will Tomorrow Bring?

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Tradition, Tradition!

In the famous movie “Fiddler on the Roof,” Tevye the father of 5 girls struggles to pass on to his children, the religious and cultural traditions that he was raised with. His oldest 3 girls each force him to reconsider his position as they make their own desires known. It is a wonderful entertaining story,

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Happy St. Patrick’s Day!

We love traveling to Ireland.  Our first family trip to Ireland was in 1986.  We had our 4 children between ages 8 and 3 for two weeks in the local area where my grandparents had emigrated from. 4400 miles from home.  It was magical. Having the experience of learning first hand about our cultural heritage is amazing.  We

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Honesty.

Singer/Songwriter Billy Joel wrote a song entitled, “Honesty.” The words make me sad, he said that “everyone is so untrue.”  Well I have to say that not everyone is untrue.  My son Nick is completely honest, even when it might be more comfortable to not be.  He doesn’t have a social filter and he will answer questions

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When I grow up…

Most of us have utter the phrase, “when I grow up, I wanna be…..”  As kids we look forward to becoming something we imagine is exciting and unique – a super hero, a fireman, a sports professional, a ballerina, etc.  My four year old grandson wants to be a pirate.  Thinking about that, I realize that

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I hate seizures.

Don’t worry this picture of Nick was not taken recently.  It is from a few years ago. However, lately I have been reading posts and queries from parents of newly diagnosed children with epilepsy. My heart breaks for those families over and over.  As I read their stories, I can remember all the swirling emotions of

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Fireworks on the 4th of July.

Nick’s first 4th of July was life changing.  He was 10 1/2 months old in 1980 and although he didn’t cry all the time like he had as an infant, he spent most of his waking hours just looking around.  He didn’t really seem to respond to any outside stimuli.  We had been living in Tacoma for

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Caregivers.

Over the years, Arden and I have often heard the comment, “I don’t know how you guys do it.  I couldn’t do it.”  I believe the secret to our success in caring for our Nick all these years, is that God has placed people in our life that have given us support and love. Some

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Siblings.

Nick was first officially diagnosed when he was about a year old, which was about the time that I realized I was pregnant again.   I calculated that Ryan would still be 2 when the baby arrived and Nick was not accomplishing normal developmental levels.   I couldn’t imagine how I was going to manage my life.

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What’s your name?

Nick loves people and he is unafraid to initiate a conversation with everyone that he meets.  We began noticing this habit of his about 10 years ago when we started using a wheelchair while we were traveling with him.  We would use the service offered by the airport to have a person push his wheelchair through the

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.