A rooftop garden, sunshine, and piano music!

A rooftop garden, sunshine, and piano music!

I am in Galway, alone.  Oh, I am with friends.  However, I am not with Nick.  He and Arden are up in Donegal and I will join them on Monday. This weekend I am presenting at a conference on Mothering at Galway University.  My talk is entitled...

On the road again!

On the road again!

Nick woke up Monday morning quite excited. He didn’t even say good morning in response to me entering his bedroom. He started singing, “On the road again!” I cracked up. He knew that we were traveling to Ireland and understood...

Top Gun Mask.

Top Gun Mask.

In the fall of 2010, Nick’s seizures were out of control.  Our epileptologist (a neurologist who specializes in epilepsy) was looking for all sorts of solutions including the usual medicine changes.  Some of the factors used to manage...

Adjusting to the new normal.

Adjusting to the new normal.

Ancient Greek philosophers taught us “The only thing that is constant is change.”  It seems that just as soon as I get used to the current changes in our lives, we are facing a new normal.  Nick has fallen a couple of times this past...

Make Accommodations!

Make Accommodations!

During our trip to Ireland last fall Nick had a seizure while Arden was bringing him down the stairs.  Because someone was with him as always, he wasn’t injured, but we felt that it was a warning.  We determined that we needed to make some...

Dreams do come true.

Dreams do come true.

For the past 18 months, we have been doing everything we can to give Nick all of the experiences that will bring him joy.  The doctors have told us that his epilepsy is progressing and it is obvious to all that know him that his capabilities have...

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