On the road again!

On the road again!

Nick woke up Monday morning quite excited. He didn’t even say good morning in response to me entering his bedroom. He started singing, “On the road again!” I cracked up. He knew that we were traveling to Ireland and understood...

Top Gun Mask.

Top Gun Mask.

In the fall of 2010, Nick’s seizures were out of control.  Our epileptologist (a neurologist who specializes in epilepsy) was looking for all sorts of solutions including the usual medicine changes.  Some of the factors used to manage...

Make Accommodations!

Make Accommodations!

During our trip to Ireland last fall Nick had a seizure while Arden was bringing him down the stairs.  Because someone was with him as always, he wasn’t injured, but we felt that it was a warning.  We determined that we needed to make some...

Nick sings in public.

Nick sings in public.

Nick wanted to sing in our church talent night this weekend, and he said that Arden and I needed to sing with him.  He said that he wanted to sing his favorite song, which is Phil Coulter’s song, “The Town I love so well.”  We told him that it...

Friendship.

Friendship.

While living our hectic lives, we can miss the subtle clues of true friendship. Nick attends a day program called Bridge Academy two days a week.  He calls it going to school.  They go on field trips and have outings all over the Seattle area...

“Scorn Not His Simplicity.”

“Scorn Not His Simplicity.”

Nick loves to sing.  At an Irish sing song, if you are willing, people will ask you to sing your party piece.  Nick has two favorite songs that he loves to sing at the parties.  Both are written by Phil Coulter.  “The town I love so well,” was...

Patience.

Patience.

It is said that patience is a virtue.  I suppose that is true.  My problem is that I have had many situations throughout my life that could be teaching me patience and yet I still experience things that take me to the edge of my patience.  I do...

Failure to thrive.

Failure to thrive.

In the first few weeks after he was born, Nick just didn’t seem to completely wake up.  He was never fully alert.  He wasn’t comforted by anything; food, warmth, human touch, nothing seemed to stop him from crying.  It wasn’t a loud cry.  Just a...

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