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I am Nick’s mom

I am grateful.

Today being Thanksgiving in the United States, I have been thinking about gratitude. I am grateful for a husband who understands me and treats me with kindness and compassion. I am grateful for forgiveness, not only from Jesus, but from everyone that I know. I am grateful for children who have courage to do what

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Seek Learning, Experience Knowledge, Gain Wisdom.

Often we look at our current situations in life and say, “I would be happy, if only I had …” (Fill in the blank) We believe that our happiness or our success is dependent on gaining something we don’t have.  The path to gain that thing can be obscured and seem daunting or even impossible.

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This is the Life!

The logistics of traveling with Nick has gotten more cumbersome as his Lennox-Gastaut Syndrome (LGS) progresses.  However we all love traveling and the extra effort is worth it.  After the LGS conference in Orlando we stayed on a few days.  We went in the hot tub, out to dinner, visited friends, but the thing that

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We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics and precision medicine.   We had a great banquet and dance.  It was a wonderful day. I took a

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The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific characteristics including multiple types of early onset hard to control seizures with slow spike and

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My response surprised me!

This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds.  It is a dose Nick has taken before when we would be traveling and he needed extra meds to combat the stress of changing time zones.

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Are Parents Responsible?

When you see a toddler having a fit, do you judge the parents and believe it is their fault? Do you feel that they should be doing something?  Often we all do.  I don’t believe that parents are responsible for their children’s mistakes. However I do believe that parents have the duty to teach their

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Gone Again!

Nick loves airplanes. Playing with them, watching them take off and land, traveling on them, everything.  Arden and I are very blessed.  This trip we are not heading to Ireland, instead, we are going to Kentucky to visit family, do Halloween, a birthday celebration and get lots of hugs from grandchildren. In the middle of

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Do you suffer from the Impostor Syndrome?

This morning, I got notification that an article I had written had been published in the Rare Patient News.  The topic is traveling when you child has special needs.   I was excited to learn about it and was reminded of a skit by Steve Martin.  The new phone book arrived in the mail (this was

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Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to current media coverage of the NFL, this blog

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.