What is today’s lesson?

What is today’s lesson?

Some days are hectic and some are relaxing.  Each one carries a potential lesson for us.  It is up to us to ponder, meditate and discover the lesson.  Some of life’s lessons are hard, others are easy.  Some lessons are learned through one...

Hindsight is really 20/20.

Hindsight is really 20/20.

For the past four months, I have been working on the second draft of the book I am writing about raising Nick.  I have such compassion for the young mother that I was.  I am astounded at the things that I have been able to do over the years.  I...

Celebrating new skills!

Celebrating new skills!

This past weekend, Nick had a bit of a cold.  I was so grateful that he had learned to blow his nose.   He was 13 then. Back in the summer of 1993, (that sounds like the beginning of a song!) we took an epic trip to Ireland with our extended...

Simple Pleasures!

Simple Pleasures!

One of the main things that we recognize about Nick, is that he finds joy in many things.   Situations that many people term the simple pleasures of life.  Everyday he experiences something in his life that he feels is wonderful and it lights up...

NORD, an amazing charity to support!

NORD, an amazing charity to support!

NORD, or the National Organization for Rare Disorders truly is a life-saving organization.  NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through...

A rooftop garden, sunshine, and piano music!

A rooftop garden, sunshine, and piano music!

I am in Galway, alone.  Oh, I am with friends.  However, I am not with Nick.  He and Arden are up in Donegal and I will join them on Monday. This weekend I am presenting at a conference on Mothering at Galway University.  My talk is entitled...

Top Gun Mask.

Top Gun Mask.

In the fall of 2010, Nick’s seizures were out of control.  Our epileptologist (a neurologist who specializes in epilepsy) was looking for all sorts of solutions including the usual medicine changes.  Some of the factors used to manage...

Adjusting to the new normal.

Adjusting to the new normal.

Ancient Greek philosophers taught us “The only thing that is constant is change.”  It seems that just as soon as I get used to the current changes in our lives, we are facing a new normal.  Nick has fallen a couple of times this past...

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