Hypervigilance can steal our good health.

Hypervigilance can steal our good health.

Recently I was told that the definition of “hypervigilance” is an enhanced state of sensory sensitivity accompanied by an exaggerated intensity of behaviors whose purpose is to detect activity.  It may bring about a state of increased...

We all need support from others.

We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics...

The joy of shared experiences.

The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific...

When things go south.

When things go south.

We have all had those days.  They start out great, amazing in fact.  And then somewhere in the middle, a crisis rears its ugly head.  Sometimes we are caught completely unawares and other times we know “the particular event” is...

Don’t underestimate the possibilities.

Don’t underestimate the possibilities.

Yesterday Arden and I witnessed another Nick miracle.  I took a picture.  Over the weekend I had been playing Bananagrams with friends.  It is a game where lettered tiles are used to spell words.  Nick was struggling to pick up the tiles.  We...

Eat Dessert First, Life Is Uncertain!

Eat Dessert First, Life Is Uncertain!

In the early 1980’s there was a dessert place in Seattle, that had the marketing slogan, “Eat Dessert First, Life Is Uncertain!” Arden and I adopted this as a family motto.  Circumstances always remind us that life is uncertain...

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