Mommy, I made you something.  You like it?

Mommy, I made you something. You like it?

Most mothers of pre-school children know the joy of receiving a handmade gift from their child.  Overflowing with love these creative masterpieces are often displayed on refrigerators at home and desks at work.  Although Nick is 38, and I am long...

Be Brave! Ride the Wave!

Be Brave! Ride the Wave!

I have never been on a surf board, and I am not sure that it will ever happen, but I do like playing around in the ocean.   While the waves are beautiful as they come crashing onto the shore, the ocean is powerful and we need to recognize signs...

Merry Christmas.

Merry Christmas.

When Nick was little, the doctors warned us many times that he would probably get to a point where he’d reach a plateau in development and quit learning new things.  That hasn’t happened. I want to tell you about our Christmas Miracle...

Death is unexpected.

Death is unexpected.

Today is the 25th anniversary of the day my dad moved his residence to Heaven.  He went a few days before the big birthday celebration for Jesus.  Nick celebrates the day people pass away as their Heaven day, to him it is like a birthday.  He...

Tradition, Tradition!

Tradition, Tradition!

The Christmas holiday begins next weekend and the common question asked is, “Are you ready?”  Well most of you are not as lucky as me.  I have a personal assistant named Nick, that makes sure I am ready long before the Christmas rush...

Just another normal response.

Just another normal response.

We have all experienced it.  We are trying our best to handle a situation and then someone, who hasn’t any experience with what we are going through, decides what is best and tells us what we should do.  I have had various responses over...

Embrace The Unexpected Joyful Moments

Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the...

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