Terrifying – Eva Gremmert

Nick is ok.

Nick has been having a wonderful time in Ireland, until just after 10:00 pm Sunday night. Without warning, he had about 30 minutes of pretty intense seizures. It was particularly terrifying. Once the seizures had stopped, it took a little...... Read More

July 31, 2017 evagremmert Adversity, Epilepsy, Frustration, I am Nick's mom, Lennox Gastaut Syndrome, LGS, Raising a child with disabilities, Seizures, Stress, Terrifying 18 Comments

Failure to thrive.

In the first few weeks after he was born, Nick just didn’t seem to completely wake up. He was never fully alert. He wasn’t comforted by anything; food, warmth, human touch, nothing seemed to stop him from crying. It wasn’t a loud cry. Just a...... Read More

February 18, 2017 evagremmert Adversity, Avoidance, Caregiver, Disability, Fighting, Frustration, Happily Ever After, I am Nick's mom, I can do hard things, Lennox Gastaut Syndrome, Overcoming Fear, Personal Growth, Procrastination, Raising a child with disabilities, Terrifying 0 Comments

Be Brave.

Nick loves music and he loves to sing. He knows hundreds of songs with all of their verses. We will sing together, sometimes for hours, but he usually won’t sing for others. Years ago we were at a party honoring our friend Paddy Bogside Doherty...... Read More

February 3, 2017 evagremmert Adversity, Caregiver, Derry City, Disability, Happy, Hope, I am Nick's mom, I can do hard things, Ireland, Lennox Gastaut Syndrome, Nick Gremmert, Overcoming Fear, Paddy Bogside Doherty, Personal Growth, Phil Coulter, Raising a child with disabilities, Terrifying 0 Comments

You fix this?

Nick broke his ankle yesterday. He tripped. We caught him and eased him to the floor. He said he was ok, so we went on with our day. He seemed a bit unsteady, but that is a common thing for him lately. We increased our support with tranfers...... Read More

February 2, 2017 evagremmert Adversity, Broken Ankle, Caregiver, Disability, Frustration, Happily Ever After, Hope, I am Nick's mom, I can do hard things, Nick Gremmert, Personal Growth, Raising a child with disabilities, Terrifying 0 Comments

Helpless.

I was talking to another mom yesterday as she related to me a story that I knew well. Her adult daughter had started seizing the day before, over 20 Grand mal seizures in a 2 hour period. The mom wasn’t able to get the prescribed rescue meds...... Read More

February 1, 2017 evagremmert Adversity, Caregiver, Disability, Frustration, Grand Mal, I am Nick's mom, Lennox Gastaut Syndrome, Nick Gremmert, Personal Growth, Prescriptions, Raising a child with disabilities, Seizure Medicaton, Seizures, Terrifying 0 Comments

Tag: Terrifying

Nick is ok.

Failure to thrive.

Be Brave.

You fix this?

Helpless.

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