Write me: eva@evagremmert.com
Singing all the verses of the National Anthem.

Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to...... Read More

Nick was Determined!

Nick was Determined!

Some days for Nick are better than others.  His capabilities and capacities seem to be variable.  When he is having a good day, we encourage him by letting him be as independent as possible in his self-care.  Sometimes if we are in a hurry or...... Read More

Celebrating new skills!

Celebrating new skills!

This past weekend, Nick had a bit of a cold.  I was so grateful that he had learned to blow his nose.   He was 13 then. Back in the summer of 1993, (that sounds like the beginning of a song!) we took an epic trip to Ireland with our extended...... Read More

When things go south.

When things go south.

We have all had those days.  They start out great, amazing in fact.  And then somewhere in the middle, a crisis rears its ugly head.  Sometimes we are caught completely unawares and other times we know “the particular event” is...... Read More

Mom, I ok!

Mom, I ok!

If you ask Nick, today is the best day of the year.  It is even better than Christmas or Easter, or anything.  It is his birthday.  Born in 1979, he is 38 today.  Each year, he is so excited as he anticipates the arrival of the 19th of August...... Read More

Keeping the Bright Side Out!

Keeping the Bright Side Out!

If you ask my cousin in Ireland how he is doing, the reply often is “Keeping the bright side out.”  He explained this to me as when he is under pressure, he finds is easier to smile through the day, while working on keeping his...... Read More

Don’t underestimate the possibilities.

Don’t underestimate the possibilities.

Yesterday Arden and I witnessed another Nick miracle.  I took a picture.  Over the weekend I had been playing Bananagrams with friends.  It is a game where lettered tiles are used to spell words.  Nick was struggling to pick up the tiles.  We...... Read More

NORD, an amazing charity to support!

NORD, an amazing charity to support!

NORD, or the National Organization for Rare Disorders truly is a life-saving organization.  NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through...... Read More

I drew Drew!

I drew Drew!

Nick continues to amaze us all.  We were attending the 60th birthday party of my cousin Drew Doherty.  We had gotten a birthday card and after writing our sentiment in the card, Arden asked Nick to write his name. We are very proud of the fact...... Read More

I thought it was a tree when I planted it!

I thought it was a tree when I planted it!

A friend was showing me around his garden, stopping in front of a small flowering stalk, he remarked, "I thought it was a tree years ago when I planted it. But it's not. It is lovely though! Walking away I thought back to when I had Nick. He is...... Read More

“That man sit down.”

“That man sit down.”

Nick loves music, especially when it is performed live.  We noticed from our first trip to Ireland that the musicians here are very talented.  Nick has a special place in his heart for a local singer/songwriter, Shunie Crampsey.  Just after the...... Read More

Dreams do come true.

Dreams do come true.

For the past 18 months, we have been doing everything we can to give Nick all of the experiences that will bring him joy.  The doctors have told us that his epilepsy is progressing and it is obvious to all that know him that his capabilities have...... Read More

Follow Eva's Blog

Follow Eva’s Blog

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 15,346 other subscribers