Write me: eva@evagremmert.com
We all need support from others.

We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics...... Read More

The joy of shared experiences.

The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific...... Read More

Do you suffer from the Impostor Syndrome?

Do you suffer from the Impostor Syndrome?

This morning, I got notification that an article I had written had been published in the Rare Patient News.  The topic is traveling when you child has special needs.   I was excited to learn about it and was reminded of a skit by Steve Martin. ...... Read More

Singing all the verses of the National Anthem.

Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to...... Read More

Be willing to try new things.

Be willing to try new things.

Nick is a great example to me.  One thing that was obvious from the first time he started physical therapy when he was a year old was that he was willing to try new things.  He is open to new experiences and challenges. I often will look at the...... Read More

Achievement is not the measure of value.

Achievement is not the measure of value.

We live in a world that honors high achievement.  I was raised in a family culture that expected excellence in school, in sports and in my career.  There is nothing wrong with working hard to achieve goals.  However, if this intense goal-oriented...... Read More

Hindsight is really 20/20.

Hindsight is really 20/20.

For the past four months, I have been working on the second draft of the book I am writing about raising Nick.  I have such compassion for the young mother that I was.  I am astounded at the things that I have been able to do over the years.  I...... Read More

Events cause priorities to shift.

Events cause priorities to shift.

Just like most everyone I know, my calendar of scheduled appointments gets filled up.  Not all of these appointments are work related, some are lunches or dinners with friends.  Some of my appointments are self-care and pampering as well.  My...... Read More

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