Write me: eva@evagremmert.com
The joy of shared experiences.

The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific...... Read More

My response surprised me!

My response surprised me!

This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds.  It is a dose Nick has taken before when we would be traveling and he needed...... Read More

Do you suffer from the Impostor Syndrome?

Do you suffer from the Impostor Syndrome?

This morning, I got notification that an article I had written had been published in the Rare Patient News.  The topic is traveling when you child has special needs.   I was excited to learn about it and was reminded of a skit by Steve Martin. ...... Read More

Singing all the verses of the National Anthem.

Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to...... Read More

Be willing to try new things.

Be willing to try new things.

Nick is a great example to me.  One thing that was obvious from the first time he started physical therapy when he was a year old was that he was willing to try new things.  He is open to new experiences and challenges. I often will look at the...... Read More

What is today’s lesson?

What is today’s lesson?

Some days are hectic and some are relaxing.  Each one carries a potential lesson for us.  It is up to us to ponder, meditate and discover the lesson.  Some of life’s lessons are hard, others are easy.  Some lessons are learned through one...... Read More

Achievement is not the measure of value.

Achievement is not the measure of value.

We live in a world that honors high achievement.  I was raised in a family culture that expected excellence in school, in sports and in my career.  There is nothing wrong with working hard to achieve goals.  However, if this intense goal-oriented...... Read More

Hindsight is really 20/20.

Hindsight is really 20/20.

For the past four months, I have been working on the second draft of the book I am writing about raising Nick.  I have such compassion for the young mother that I was.  I am astounded at the things that I have been able to do over the years.  I...... Read More

Events cause priorities to shift.

Events cause priorities to shift.

Just like most everyone I know, my calendar of scheduled appointments gets filled up.  Not all of these appointments are work related, some are lunches or dinners with friends.  Some of my appointments are self-care and pampering as well.  My...... Read More

Follow Eva's Blog

Follow Eva’s Blog

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 16,697 other subscribers