Write me: eva@evagremmert.com
Merry Christmas.

Merry Christmas.

When Nick was little, the doctors warned us many times that he would probably get to a point where he’d reach a plateau in development and quit learning new things.  That hasn’t happened. I want to tell you about our Christmas Miracle...... Read More

Death is unexpected.

Death is unexpected.

Today is the 25th anniversary of the day my dad moved his residence to Heaven.  He went a few days before the big birthday celebration for Jesus.  Nick celebrates the day people pass away as their Heaven day, to him it is like a birthday.  He...... Read More

Tradition, Tradition!

Tradition, Tradition!

The Christmas holiday begins next weekend and the common question asked is, “Are you ready?”  Well most of you are not as lucky as me.  I have a personal assistant named Nick, that makes sure I am ready long before the Christmas rush...... Read More

Just another normal response.

Just another normal response.

We have all experienced it.  We are trying our best to handle a situation and then someone, who hasn’t any experience with what we are going through, decides what is best and tells us what we should do.  I have had various responses over...... Read More

Embrace The Unexpected Joyful Moments

Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the...... Read More

I am grateful.

I am grateful.

Today being Thanksgiving in the United States, I have been thinking about gratitude. I am grateful for a husband who understands me and treats me with kindness and compassion. I am grateful for forgiveness, not only from Jesus, but from everyone...... Read More

Seek Learning, Experience Knowledge, Gain Wisdom.

Seek Learning, Experience Knowledge, Gain Wisdom.

Often we look at our current situations in life and say, “I would be happy, if only I had …” (Fill in the blank) We believe that our happiness or our success is dependent on gaining something we don’t have.  The path to...... Read More

We all need support from others.

We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics...... Read More

The joy of shared experiences.

The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific...... Read More

My response surprised me!

My response surprised me!

This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds.  It is a dose Nick has taken before when we would be traveling and he needed...... Read More

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