Write me: eva@evagremmert.com
Just another normal response.

Just another normal response.

We have all experienced it.  We are trying our best to handle a situation and then someone, who hasn’t any experience with what we are going through, decides what is best and tells us what we should do.  I have had various responses over...... Read More

Embrace The Unexpected Joyful Moments

Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the...... Read More

I am grateful.

I am grateful.

Today being Thanksgiving in the United States, I have been thinking about gratitude. I am grateful for a husband who understands me and treats me with kindness and compassion. I am grateful for forgiveness, not only from Jesus, but from everyone...... Read More

Seek Learning, Experience Knowledge, Gain Wisdom.

Seek Learning, Experience Knowledge, Gain Wisdom.

Often we look at our current situations in life and say, “I would be happy, if only I had …” (Fill in the blank) We believe that our happiness or our success is dependent on gaining something we don’t have.  The path to...... Read More

We all need support from others.

We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics...... Read More

The joy of shared experiences.

The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific...... Read More

My response surprised me!

My response surprised me!

This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds.  It is a dose Nick has taken before when we would be traveling and he needed...... Read More

Do you suffer from the Impostor Syndrome?

Do you suffer from the Impostor Syndrome?

This morning, I got notification that an article I had written had been published in the Rare Patient News.  The topic is traveling when you child has special needs.   I was excited to learn about it and was reminded of a skit by Steve Martin. ...... Read More

Singing all the verses of the National Anthem.

Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to...... Read More

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