Write me: eva@evagremmert.com
Don’t underestimate the possibilities.

Don’t underestimate the possibilities.

Yesterday Arden and I witnessed another Nick miracle.  I took a picture.  Over the weekend I had been playing Bananagrams with friends.  It is a game where lettered tiles are used to spell words.  Nick was struggling to pick up the tiles.  We...... Read More

Eat Dessert First, Life Is Uncertain!

Eat Dessert First, Life Is Uncertain!

In the early 1980’s there was a dessert place in Seattle, that had the marketing slogan, “Eat Dessert First, Life Is Uncertain!” Arden and I adopted this as a family motto.  Circumstances always remind us that life is uncertain...... Read More

NORD, an amazing charity to support!

NORD, an amazing charity to support!

NORD, or the National Organization for Rare Disorders truly is a life-saving organization.  NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through...... Read More

You can’t always count the cost.

You can’t always count the cost.

In Enniscrone, Co. Sligo, Ireland, there is a large 767 airplane in a field.  It is part of the Quirky Glamping Village.  As you know, Nick loves planes and we were told we had to see it.  He thought it was very funny. Over the weekend, we heard...... Read More

On the road again!

On the road again!

Nick woke up Monday morning quite excited. He didn’t even say good morning in response to me entering his bedroom. He started singing, “On the road again!” I cracked up. He knew that we were traveling to Ireland and understood...... Read More

Top Gun Mask.

Top Gun Mask.

In the fall of 2010, Nick’s seizures were out of control.  Our epileptologist (a neurologist who specializes in epilepsy) was looking for all sorts of solutions including the usual medicine changes.  Some of the factors used to manage...... Read More

Adjusting to the new normal.

Adjusting to the new normal.

Ancient Greek philosophers taught us “The only thing that is constant is change.”  It seems that just as soon as I get used to the current changes in our lives, we are facing a new normal.  Nick has fallen a couple of times this past...... Read More

An up and down day.

An up and down day.

Today was a rough one. Nick was sick. It might turn out that he just has a cold, but that is the problem, we never know. He kept sneezing. I think that if I was watching our day today on a TV show, I might even think it was funny. It could be...... Read More

Information about seizures.

Information about seizures.

Our son Nick has epilepsy.  He has an epilepsy syndrome called Lennox Gastaut Syndrome, or LGS.  It is a type of epilepsy with multiple different types of seizures that begins in childhood.  The seizures are hard to control and require life-long...... Read More