Write me: eva@evagremmert.com
What I want to be when I grow up.

What I want to be when I grow up.

This week we attended our grandson’s graduation from Pre-School.  Everyone in his class is moving on to kindergarten.  It was a big deal for everyone, the kids, the parents, family members, and the teachers.  The best part for me was when...... Read More

Try saying “oh well.”

Try saying “oh well.”

Nick is constantly my teacher.  I want to share another valuable lesson he has taught me. Years ago, we noticed that whenever something bad had happened, Nick would say, “Oh well.”  It might be when the stack he was creating fell over, or even...... Read More

Would you be star struck?

Would you be star struck?

If you had the chance to meet and talk to a TV celebrity that you admired, what would you do?  Could you look them in the eye?  Would you say anything?  What would happen? Nick has always admired a local news reporter, Dan Lewis.  Nick got a...... Read More

Sometimes I ask, is it worth it?

Sometimes I ask, is it worth it?

As a consequence of his Lennox Gastaut Syndrome, Nick’s mobility has decreased over time and he has experienced regression of many skills that he worked hard to master.  So of course, because of this regression, his personal care needs have...... Read More

Today was a good day!

Today was a good day!

I really enjoy spending time with the attendees at the MIRCI Conferences.  They are women from all over the globe who come together once a year for three days to discuss current issues surrounding women, feminism and motherhood.  It is inspiring...... Read More

Wait! Stop! I got on the wrong ride.

Wait! Stop! I got on the wrong ride.

When I was a young mom, I was not naïve; I knew that life has it ups and downs.  I expected a Merry-Go-Round, and got a Roller-Coaster. I thought that my life would go up and down, up and down, in gentle expected cycles of highs and lows.  I...... Read More

We underestimate others.

We underestimate others.

We have all heard the old adage, “Don’t judge a book by its cover.”  The warning is to not make quick judgements about people.  If we don’t dig beneath the surface, we can underestimate them, which also means we can...... Read More

Save the best for last.

Save the best for last.

Nick was about seven when he finally gained the skills to feed himself.  It was a long road, but he finally got there.  He spent many years, three meals a day, eating food that was pureed in a blender.  It was the only consistency he could manage...... Read More

Merry Christmas.

Merry Christmas.

When Nick was little, the doctors warned us many times that he would probably get to a point where he’d reach a plateau in development and quit learning new things.  That hasn’t happened. I want to tell you about our Christmas Miracle...... Read More

Embrace The Unexpected Joyful Moments

Embrace The Unexpected Joyful Moments

Caregiving for a loved one with a rare and debilitating disease can stretch our capacities to the maximum.  Some days our responsibilities feel overwhelming.  Those days, when we are observing our life, all we can see is the storm clouds and the...... Read More

When does the Christmas Season start?

When does the Christmas Season start?

Nick has strong opinions on what he considers the correct timing of things.  Yesterday was Thanksgiving and today begins the Christmas season.  First thing this morning he began singing Christmas carols.  Sometimes during the year, I tease him a...... Read More

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