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My Experience

Achievement Is Impressive, Hard Work Is Inspiring.

Today we watched the NFL Super Bowl game.  I always find the ads interesting.  Some are funny and some are strange.  But the ones that I remember best are the ones that show the athletes competing in the upcoming Winter Olympics in South Korea.  All of the athletes that I saw on TV today, both

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Celebrating my first year blogging.

Anniversary dates are a time of celebrating and reflection.  Just over a year ago I began writing a themed blog.  I have learned much this past year.  My subject matter typically revolves around Nick and the lessons I have learned while caring for him for over 38 years. I am an ordinary mom living an

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What would I do?

My son Nick has a rare, debilitating, life threatening disease called Lennox Gastaut Syndrome.  For over 38 years I have been consciously aware that with LGS he has an increased risk of unexpected premature death.  There is even a name for it.  SUDEP, sudden unexpected death from epilepsy.  This hangs over me every day.  When

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I am grateful.

Today being Thanksgiving in the United States, I have been thinking about gratitude. I am grateful for a husband who understands me and treats me with kindness and compassion. I am grateful for forgiveness, not only from Jesus, but from everyone that I know. I am grateful for children who have courage to do what

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The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific characteristics including multiple types of early onset hard to control seizures with slow spike and

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My response surprised me!

This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds.  It is a dose Nick has taken before when we would be traveling and he needed extra meds to combat the stress of changing time zones.

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Honor Thy Father.

Today is my dad’s birthday.  He would have been 87 today.  If he was here we would be having a massive cake with lots of candles.  He would joke about needing a fire extinguisher nearby.  He has been gone 25 years so the last time we had candles for him, there were quite a bit

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Achievement is not the measure of value.

We live in a world that honors high achievement.  I was raised in a family culture that expected excellence in school, in sports and in my career.  There is nothing wrong with working hard to achieve goals.  However, if this intense goal-oriented life is accompanied by self-doubt and feelings of not being good enough, then

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Search for the common ground.

People do things because it makes sense to them.  We may not understand their perspective because we haven’t had the same life experiences. If we honestly make an effort, we may discover and learn something new. I have a few friends who have different perspective and ideas than I do.  For some it is religion,

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I am asking for your help.

Over the years, I have had many people tell me that I should write a book about my experiences raising Nick. I wondered if I would have the capacity to write it.  Would our story have significance or be of value to anyone?  If I went through all the time and effort, would anyone read

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Announcing that I have finished a book with the working title of “The Fairy Fort.” I am currently pitching it to publishers. Keep checking back to watch the progress of my newest novel.

Here is a quick glimpse of the story.

Sarah Doherty is an 18-year-old living in rural Ireland at the tail end of the Great War. Plagued by severe epilepsy, she is protected by her parents and lives a sheltered, secluded, lonely life. The Fae, local Irish fairies, interfere with her life. She falls forward a century in time through the local fairy fort of standing stones. She had a seizure in 1918 and woke up in 2020. The 21st century world includes life-saving prescriptions, physical comforts and the independence and freedom she seeks. The locals are welcoming and Andy Mclaughlin, a handsome young historian, is intriguing. She doesn’t want to return home.

Then a letter arrives from Boston divulging the story of Sarah and Andy’s lives that are deeply entwined in the previous century. They are not yet in love but as they seek to verify the letter through online resources, they feel a growing obligation to their unborn family and to each other. What would happen to their posterity living in Boston if they don’t return to 1918? Even if they do make it back, her parents can never know what happened to her or that would change everything.

This Young Adult time-travel romance explores the question: Do we have the freedom to make choices or is free will an elaborate illusion?

This is my third book. I love reading time travel romances. I am an advocate for epilepsy awareness because my 43-year-old son has intractable epilepsy. As a genealogist specializing in Irish research, I live part of the year in the village where the story is based. I wrote the book to help young adults understand that difficult situations can change your life. Sometimes miraculously.