Write me: eva@evagremmert.com
Celebrating new skills!

Celebrating new skills!

This past weekend, Nick had a bit of a cold.  I was so grateful that he had learned to blow his nose.   He was 13 then. Back in the summer of 1993, (that sounds like the beginning of a song!) we took an epic trip to Ireland with our extended...... Read More

Life is full of opposites.

Life is full of opposites.

Yesterday as I was working on my draft rewrite of the book I am writing about being Nick’s mom, I noticed something incredible.  Our lives are full of experiences that create opposing emotions. For example, Nick was almost four when Derek...... Read More

Don’t compare life experiences, share emotions instead.

Don’t compare life experiences, share emotions instead.

A friend of mine was recently diagnosed with breast cancer.  Another friend’s husband has just lost his job.  Arden and I have been helping Nick learn to deal with the side affects of increasing his seizure medicine to avoid seizure...... Read More

Keep on going, and going, and going.

Keep on going, and going, and going.

I was chatting this morning with a mom who’s 16-year-old daughter has the same syndrome as our Nick.  She said that just when she thinks that she can’t do anymore, then somehow she keeps on going, just like the Energizer Bunny. I have...... Read More

Stop and smell the roses!

Stop and smell the roses!

Every once in a while we all need a break from our typical routine.  When I was a young mom, a wise man told me that “A change was as good as a rest.”  We all look forward to our scheduled vacation time.  However, if we are...... Read More

My child has seizures and a wheelchair, can we travel?

My child has seizures and a wheelchair, can we travel?

This blog I wrote is in response to queries I have received.  The answer is YES you can travel.   However some pre-planning and organization can help make the trip more relaxing.  Planning Your Trip: Familiarize yourself with where you are...... Read More

When things go south.

When things go south.

We have all had those days.  They start out great, amazing in fact.  And then somewhere in the middle, a crisis rears its ugly head.  Sometimes we are caught completely unawares and other times we know “the particular event” is...... Read More

You done being frustrated with me?

You done being frustrated with me?

Most of the time, Nick is very sweet and compliant.  However, he is human and there are times his behavior is not correct and I get frustrated at him.  Even angry. As soon as he notices that I am upset, he immediately apologizes.  “I sorry...... Read More

Mom, I ok!

Mom, I ok!

If you ask Nick, today is the best day of the year.  It is even better than Christmas or Easter, or anything.  It is his birthday.  Born in 1979, he is 38 today.  Each year, he is so excited as he anticipates the arrival of the 19th of August...... Read More

Go Hawks! It’s Blue Friday.

Go Hawks! It’s Blue Friday.

Nick woke up today asking, “what day is it?”  And before we could answer him, he yelled out, “It’s Blue Friday, Game Day.”  Nick loves football and especially the Seahawks playing football.  He knows that football...... Read More

Keeping the Bright Side Out!

Keeping the Bright Side Out!

If you ask my cousin in Ireland how he is doing, the reply often is “Keeping the bright side out.”  He explained this to me as when he is under pressure, he finds is easier to smile through the day, while working on keeping his...... Read More

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