Write me: eva@evagremmert.com
We all need support from others.

We all need support from others.

There were many things that I loved at the second day of the LGS Foundation Conference in Orlando.   There were thought provoking presentations on various topics including LGS research, new drug therapies, surgical options, devices, plus genetics...... Read More

The joy of shared experiences.

The joy of shared experiences.

Arden, Nick and I are in Orlando, Florida, attending the LGS Foundation Conference 2017.  For those of you who don’t know, Lennox-Gastaut Syndrome, or LGS is the syndrome that Nick has.  It is a rare epilepsy disease that shows specific...... Read More

My response surprised me!

My response surprised me!

This week we received a follow-up call from Nicks neurologist. Nicks seizure med blood levels weren’t optimal so he increased one of the doses of one of the meds.  It is a dose Nick has taken before when we would be traveling and he needed...... Read More

Do you suffer from the Impostor Syndrome?

Do you suffer from the Impostor Syndrome?

This morning, I got notification that an article I had written had been published in the Rare Patient News.  The topic is traveling when you child has special needs.   I was excited to learn about it and was reminded of a skit by Steve Martin. ...... Read More

Singing all the verses of the National Anthem.

Singing all the verses of the National Anthem.

Do you know all 4 verses of our US national anthem?  Nick does.  Did you know that there were 4 verses?  I think that most people in the US don’t. You can look it up online.  I find the messages of each verse to be inspiring.  Contrary to...... Read More

Be willing to try new things.

Be willing to try new things.

Nick is a great example to me.  One thing that was obvious from the first time he started physical therapy when he was a year old was that he was willing to try new things.  He is open to new experiences and challenges. I often will look at the...... Read More

What is today’s lesson?

What is today’s lesson?

Some days are hectic and some are relaxing.  Each one carries a potential lesson for us.  It is up to us to ponder, meditate and discover the lesson.  Some of life’s lessons are hard, others are easy.  Some lessons are learned through one...... Read More

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