NORD, or the National Organization for Rare Disorders truly is a life-saving organization. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Donations to NORD directly benefit families like ours. One of the programs they have is to provide medication for those who are uninsured for certain life-sustaining medications.
Last year we were told by our insurance company that they would not longer pay for one of Nicks meds. He is missing a critical enzyme in his digestive system that breaks down protein. So without this prescription, his blood ammonia levels will rise to life-threatening levels. He takes this drug three times a day to keep the ammonia level in his blood down. We had only two weeks of pills left when we were told we wouldn’t get any more covered by our insurance company.
The manufacturer of the medication put us in touch with NORD. We filled out their application and the next day we were told that our situation qualified for support. Two days before we ran out of the pills, we had a months supply delivered to our doorstep at no cost to us. Each month since then, it has been the same.
We have been really impressed with how caring and concerned the staff at NORD are. They are genuinely passionate about helping Nick get the medications that he desperately needs.
I have never been so afraid as I was during those two weeks. I am so grateful for this organization.
If you are looking for a charity that truly makes an impact in other peoples lives, choose to donate to NORD today. You can find information about the organization on FaceBook, Twitter, and their website.
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